Health update

The last time I mentioned my health was back in November of last year; at that point I was keen to get back to work. I was frustrated to be sitting at home with not much to occupy myself, and feeling somewhat guilty for exceeding the 3-months that I’d originally suggested to my management that I’d need to be away from work.

After some meetings with my management we agreed that I’d start a phased return to work in late November by working approximately half days from home, with no commuting. The main intent was for me to catch up on all the things that had gone on (including a large internal reorganisation) while I was out, get all my admin (and email!) up to date, rather than worry too much about any specific business goals.

And to my surprise I found it incredibly difficult. Initially I struggled to regularly work even half a day, and when I tried to “push on through” I failed. Spectacularly. I’d literally fall asleep at the keyboard. Over the 6 weeks running up to Christmas I did see my stamina improve a little, and I even managed some half days back in my local office. But progress was depressingly slow, and when I first tried to commute up to London for a meeting, I felt so unwell by the time I’d got there that I barely had time to attend the meeting before I had to leave for home again.

A fortnights break at Christmas was a welcome relief, during which I had another consultation with my surgeon, and brought up the issue of my tiredness and ongoing kidney pain. The result was a set of blood and urine tests.

The blood tests revealed little that was wrong, or at least unexpected; my kidney function appeared to be fine, but I was still showing the signs of a low-level background infection. Since my perineal wound was (and is) still open, this was only to be expected. But fundamentally, I was in as good health as anyone could expect – the suggestion was that I just needed more time to get over my last operation, and that all the other treatments that I’ve been through over the last 4 years probably weren’t helping.

The urine test however, showed another drug-resistant UTI. More antibiotics put paid to that, but I was advised to see my urologist again too. He suspects that my problems with kidney pain and repeated UTI’s are ultimately due to a problem called renal or vesicoureteral reflux. This is normally a condition most common in young children, but in my case is almost certainly caused by the process of reimplanting my left ureter; it no longer acts as a one-way valve, allowing urine to flow back up into my kidney.

Of itself, this causes nothing more than mild discomfort. But in combination with UTI’s, this can cause significant pain (as I discovered) and potentially further permanent damage to my kidney, which is most definitely not desirable. So for the next six months I’ve been prescribed a prophylactic dose of antibiotic (Trimethoprim) to keep the UTI’s at bay.

And since returning to work after the Christmas break, I’ve noticed that my stamina has noticeably improved. I’m still a long way from what I would consider normal, but I’m managing to work much closer to full days now, and I’m coping with some commuting too. I can see real progress.

Of course, in retrospect the lesson to be learned is that I probably tried to come back to work too early. I suspect that if I’d stayed off work for another month or so my recovery would probably have been faster and easier. But I’d have been climbing the walls!


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